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The Oncologist, Vol. 5, No. 1, 53-62, February 2000
© 2000 AlphaMed Press


The Schwartz Center Rounds

Sedation for Intractable Distress of a Dying Patient: Acute Palliative Care and the Principle of Double Effect

Eric L. Krakauerb, Richard T. Pensona, Robert D. Truogc, Linda A. Kingb, Bruce A. Chabnera, Thomas J. Lynch, Jr.a

a Hematology-Oncology Department and b Palliative Care Service, Massachusetts General Hospital; c Department of Anesthesiology, Children's Hospital, Boston, Massachusetts, USA

Correspondence: Richard T. Penson, MD, Hematology-Oncology Department, Massachusetts General Hospital, Jackson 1021, 55 Fruit Street, Boston, Massachusetts 02114-2617, USA. Telephone: 617-726-5867; Fax: 617-726-6974; e-mail: rpenson{at}partners.org

Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH), founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a nonprofit organization dedicated to supporting and advancing compassionate health care delivery, which provides hope to the patient, support to caregivers, and encourages the healing process. The Center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members.

The case presented is of a young man dying of recurrent epithelioid hemangioendothelioma, distressed with stridor and severe pain, whose poorly controlled symptoms were successfully treated with an infusion of propofol, titrated to provide effective comfort in the last few hours of the patient's life. The tenet of double effect, which allows aggressive treatment of suffering in spite of foreseeable but unintended consequences, is reviewed. The patient's parents were invited and contributed to the Rounds, providing compelling testimony to the power of the presence of clinicians at the time of death and the importance of open communication about difficult ethical issues.

Key Words. Double effect • Palliative care • Propofol • Caregivers • Psychosocial




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